The Life of a Medically Harmed Patient

It is time for me to tell my story. It has many layers and covers many issues, and that makes it complicated to tell. God willing, and with help from the Universe, I will tell my story in detail soon. For now, I will briefly summarize it:

I was working as an RN when I was violently assaulted by a patient that was hallucinating due to withdrawal from drugs and alcohol. The result was cervical (neck) spinal cord compression that eventually lead to right sided paralysis. Emergency surgery to relieve the spinal cord compression was successful in returning the movement on my right side. However, during surgery something went terribly wrong and I had a massive lung hemorrhage that included 100% of all lung lobes bilaterally and even my trachea. Major medical errors were made after this surgery that greatly increased the scarring of my lungs that the hemorrhage caused. I was told I would die if I caught a lung infection. That was four years ago. I have fought hard to survive, without any help from workers compensation, without any help from California’s medical malpractice system, and without any help from the medical insurance I had with my employment before the surgery (they refused to cooperate and Cobra my insurance) although I was left 100% disabled. Some wonderful people sent me their unopened inhalers that I needed to survive. Today I am preparing to begin evaluation for a lung transplant. The evaluation will begin this week.

All of the members of my facebook group ‘Medical Error Transparency Plan’, and my followers on Twitter  are very dear to me because even with your pain and suffering, you all hope to make this a better healthcare world for others. Thank you for being the kind of people that have compassion for others. It is a quality the industry lacks, but there are many very good and compassionate healthcare workers that have joined us to seek change. Let’s continue to stick together to find real solutions!

Posted in Uncategorized | 2 Comments

Buyer beware: no return, redo in hospital care

 

Guest Blog:

Buyer beware: no return, redo in hospital care

 

Posted in Uncategorized | Leave a comment

Advocates Respond to ‘Law ignored, patients at risk’

 
Stop the Medical Harm! Tell the FDA and NIH to Enforce the Law!
 
A recent article by Charles Pillar, Law Ignored, Patients at Risk,
http://www.statnews.com/2015/12/13/clinical-trials-investigation/ alerts us to an alarming violation of a federal law, https://www.gpo.gov/fdsys/pkg/PLAW-110publ85/pdf/PLAW-110publ85.pdf#page=82, that requires public reporting of clinical trials, including some that involve, “…life and death problems.” Even more alarming, the article states our government agencies, the NIH and FDA, are not enforcing the law.
 
What do we do when our top government healthcare agencies do not follow, nor enforce, a law designed to deliver timely and safer healthcare, and this failure can result in patient harm and death? For starters, we can ask them to look into this failure, correct it, and let us know what corrections have been implemented.
 
Patient advocates across the country are informing others of this failure, and gathering signatures on this letter, which will be sent to all the agencies listed.
 
Letter:
 
Loretta E. Lynch
Attorney General
U.S. Department of Justice
950 Pennsylvania Avenue, NW
Washington, DC 20530-0001
 
HS Secretary Sylvia Mathews Burwell
U.S. Department of Health & Human Services
200 Independence Avenue, S.W.
Washington, D.C. 20201
 
Daniel R. Levinson, Inspector General
Office of Inspector General
U.S. Department of Health and Human Services
330 Independence Avenue, SW
Washington, DC 20201
 
NIH Director Dr. Francis Collins
National Institutes of Health
9000 Rockville Pike
Bethesda, Maryland 20892
 
Dr. Stephen Ostroff, M.D.,
FDA Commissioner
Food and Drug Administration
10903 New Hampshire Ave
Silver Spring, MD 20993-0002
 
Attorney General Loretta E. Lynch,
 
Patient advocacy groups across the U.S. are very concerned with the disregard for human life, patient safety, transparency, and accountability the NIH, and the FDA, have shown by not enforcing timely reporting of federally funded clinical trials.
 
A recent article by Charles Piller, Law Ignored, Patients at
Risk http://www.statnews.com/2015/12/13/clinical-trials-investigation/ alerts us to an alarming violation of a federal law, https://www.gpo.gov/fdsys/pkg/PLAW-110publ85/pdf/PLAW-110publ85.pdf#page=82, that requires public reporting of clinical trials, including some that involve, “…life and death problems.” Even more alarming, the article states our government agencies, the NIH and FDA, are not enforcing the law.
 
Charles Piller writes, “The federal government has the power to impose fines on institutions that fail to disclose trial results, or suspend their research funding. It could have collected a whopping $25 billion from drug companies alone in the past seven years. But it has not levied a single fine.”
 
Attorney General Loretta Lynch, we are asking that you take immediate action to correct the violation of law that is occurring, both as a failure to report clinical trial data, and also as a failure to demand accountability with the power the law, and the people, have entrusted you. We also ask that you issue a public report on how you will correct these urgent issues of patient safety.
 
Thank you in advance for the resolution of these urgent issues.
 
Sincerely,
 
Suzan Shinazy
Medical Error Transparency Plan, Founder
suzan1111@hotmail.com @Suzan Shinazy
 
To sign on to this letter, please leave your name, organization (if any) city, and state in the comment section below, or contact me privately at suzan1111@hotmail.com. Thank you!
Posted in Uncategorized | 2 Comments

Petition to Mandate Medical Error Reporting!

 

This petition is not active at this time.

Hello,

Please read and consider signing and sharing this petition calling for a ‘Medical Error Transparency Plan’. This petition is on the White House’s  ‘We The People’ page. We need 100,000 signatures within 30 days to get a response from the Obama Administration.

Here’s some more information about this petition:

Mandate Reporting of All Medical Errors to an Independent Oversight Committee, and to the Patient or Their Next of Kin.

We call on President Obama to mandate a national ‘Medical Error
Transparency Plan’. Medical errors are known to be the third leading
cause of death, and medical errors also create a high number of disabilities.
Patient’s human rights are being violated by the current lack of
transparency. We call for mandatory reporting of medical errors by anyone
that has knowledge of, or reasonably suspects, that a medical error has
occurred. Reporting must be to an independent oversight committee as well as
to the patient, or to the deceased / incapacitated patient’s healthcare
representative.

You can view and sign the petition here:

http://wh.gov/iBlpa

Here is a link to a facebook page that promotes the petition and also where patients can tell their stories:
https://www.facebook.com/groups/Medicalerrortransparencyplan/

Thank you very much for your time and help in improving patient safety while decreasing medical errors.

Suzan Shinazy RN
suzan1111@hotmail.com
661-340-8955

Posted in Uncategorized | Leave a comment

An RN’s Real Education

th

This post is dedicated to my mother, Shirley June Holderness.  I watched her die from medical errors in the southern California town of Loma Linda.  She fought valiantly for seven weeks to live, before succumbing to septic shock from the hospital acquired infections that the physicians refused to treat. She had just had her 66th birthday.

My mother was admitted to the hospital due to a heart attack. She had a stent placed and her heart function returned to completely normal functions.  It was the infections she caught in this hospital, and the refusal to treat the infections that killed her. On admission to the hospital, my mother was tested for infection in her blood, urine and sputum; these test reveled that she did not have any infection. The three infections she caught in the hospital were MRSA, Acinetobacter baumannii  and yeast. Laterher records revealed the physician ignored the lab results and refused to treat these infections for days before she went into septic shock and was put on life support, and even then the physician refused to give her the correct antibiotics for 12 more hours.

As an ICU RN I knew the mistakes they were making.  I begged for the correct treatment, and when the physicians refused,  I tried to transfer my mother out of there.  My mother’s regular physicians did not practice at this Loma Linda hospital, and they wanted her transferred to a hospital they practiced at. The physicians at the  Loma Linda hospital would not cooperate, they would not speak to my mother’s own physicians, or give them her medical chart, which is necessary before transferring. 

As if that wasn’t enough, when my mother died from this Loma Linda’s hospitals errors, I had to get the county coroners office to subpoena my mothers body and records out of the hospitals morgue. The hospital did not notify the crematory to come and pick up her body, although they had been given all the details several times and it was also noted in her chart.  I called the crematory the next day and was told the hospital never notified them, but they said they would send drivers to pick her body up immediately.  About an hour later, the crematory called me and apologized, “I do not know how to tell you this because it has never happened to us before, but the hospital refused to allow our drivers to pick up your mothers body. Our drivers told us that two physicians were in the morgue fighting over who was going to sign the death certificate.”  The hospital did not cooperate with my request either, so I had to call an attorney and get the county coroners involved. Even with the county coroners subpoena, it took three days for them to get my mothers records.

 I pursued a lawsuit in spite of many California attorneys telling me that this particular hospital, an ‘icon of the community’,  had the largest defense team in California, and ‘…they will make sure you spend more than you can ever recover…’ due to California’s outdated laws from the ’70′s.  My mother’s own physicians, that had known her a long time, told me I needed to pursue a wrongful death lawsuit. I spent a lot of money, only to discover what all the attorneys tried to tell me was true. The medical industry lets you down because the legal industry already has.  I didn’t have enough money to continue. The attorney did not charge, but I had to pay for legal experts and other costs, and they are very expensive. California’s CAP laws are responsible for many cases of poor care, deaths and disabilities being swept under the rug, and by no means does this outdated law bring about improvements in patient safety.

I still have my mothers medical records with proof all of this happened, and will gladly share them in the right situation.

My real education as a nurse began the day my mother was admitted to this Loma Linda, California, hospital.

I  had the highest respect for my mother’s life, although the medical and legal community did not. She taught me to respect everyone’s life, and that is why this nurse will speak for the patients.

Posted in Uncategorized | 19 Comments